Why NeuroKids?

Adding modern virtual presence technology and state-of-the-art surgical equipment to our unparalleled mix of experience, expertise, and connections uniquely positions NeuroKids to scale the solution to meet the needs of children with hydrocephalus and spina bifida and their families around the world.

We are the only organization setting out to save the life of every baby born with hydrocephalus in our lifetime.

By design, our model focuses on in-depth coaching and mentoring relationships with strategically selected neurosurgeons. Over the course of one to two years, they are positioned to serve as virtual and on-site trainers for others in their regions, leveraging their location and shared language to expand the network, independent of American capacities. After a few cycles, the network will reach a scale where the greatest number of children have access to the neurosurgical care they need and surgeons will have the on-going mentoring and support they rely on. By 2050, our self-replicating model will reach a scale that ensures every child on the planet born with hydrocephalus has access to ETV/CPC.

We have both experience and expertise.

NeuroKids is building on its core strengths and historical areas of expertise in pediatric neurosurgery, particularly in the areas of hydrocephalus and spina bifida. Our work is led by some of the leading pediatric neurosurgeons in the world, including Dr. Benjamin Warf, Dr. Michael Dewan, Dr. Jacob Lepard, and their networks. Also serving on the board are Ms. Ashley Birch, a neurosurgical nurse practitioner, Ms. Sarah Wineland, a management consultant, and Mr. Sergio Mainetti, a program management professional. Mr. Derek Johnson, the Chief Executive for NeuroKids, has over 20 years experience in nonprofit administration and leadership. Together, our management and board represent more than 100 years of experience working in lower-resource settings and specifically with populations with neurologic conditions.

We have proven success in advancing the treatment of hydrocephalus. 

We have a long track record of success. Our team has over 70 publications in leading medical and scientific journals, like the New England Journal of Medicine, highlighting our accomplishments and work in pediatric neurosurgery and especially in hydrocephalus treatment and care.

We have long-standing partnerships with leading institutions. 

Our partners include academic and institutional leaders in medicine, research and technology, including Harvard Medical School, Boston Children’s Hospital, Vanderbilt Children’s Hospital, Yale University and the surgical tech & education nonprofit Ohana One. We work closely with Karl Storz, the world’s leading endoscope manufacturer, as well as with international federations (WFNS, ISPN, IFSBH, CAANS) and other nonprofit organizations (InterSurgeon, Child Help and FIENS).